
I made hot chocolate this morning.
It was cold in the house, because I still haven't turned on the heater yet, and when I looked outside, it seemed like the perfect morning to make it. The weather is changing--getting a little bit colder every day, with more and more leaves dropping from the trees. Winter is coming, and while I'm bracing myself for the months of gray, I know that eventually spring will come, and the world will be bright and new once again.
We have even more changes going on in our house right now, and I hope that just like the changing seasons, once the hard (but necessary) months of gray pass, we will come out on the other side brighter, too.
............
Last week, my little Emma was diagnosed with celiac disease. Many of you may know what that is, or have a family member who has it, because it's quickly becoming one of the fastest growing (or rather, recognized) diseases of the decade.
It basically means that she is gluten intolerant, and cannot eat wheat, rye, oats, or barley. She is now on a gluten-free diet, which when followed correctly, will not only eliminate any symptoms, but actually heal the affected villi in her small intestine.
When you stop and think how many things have gluten in it, it can seem very overwhelming. Most processed or boxed foods, and even canned soups contain gluten in some form--many times contained in the added preservatives, such as modified food starch, monosodium glutamate, and maltodextrin. It eliminates cookies, crackers, bread, pasta, most cereals, pizza, and anything made with flour.
For a little four year old, it can be really hard to understand why she can't have the preschool snack that everyone is having, or why she can't eat the donuts at the cider mill. But, we have some things on our side, too. Emma is a very logical four year old, and has the ability to reason much more than any of my others have been at her age. When I explained to her that eating certain things made her tummy hurt, and that we really needed to stop eating them, she understood. She has taken to caramel rice cakes like nothing else, and loves that she has special boxes of rice pasta and granola bars that are just hers.
I'm not saying we're not going to have challenges, because they will most certainly come. Trying to cook a dinner each night that she can eat, and that everyone will enjoy will be tricky. Helping her through the birthday parties, preschool snacks, lunches with friends, school lunches, going out to eat, and the myriad of other times that this will be an issue is going to be hard. At some point, her reasoning will fall, and her emotions will come through. I know there will be times where both of us will be crying our eyes out, maybe even banging our fists at the sheer frustration and disappointment that will most likely come. And that's okay. But I'm hoping that if we focus on the positive things--on all the things we have to be grateful for--it might help us all through those difficult moments.
..........
I'm grateful that there is something we can do to help--that we have some modicum of control, and that I don't have to sit and wonder if she'll be okay. As long as the diet is followed, she will be healthy and happy. How fortunate we are, for this.
I'm grateful for parents that paved the way for me, and raised my brother and sister who also have it. I grew up in a home where we ate simply, but never knew it. My dad is the rice flour expert, and has already shared the secrets to yummy rice waffles. (which are actually really good!)
I'm grateful for an amazing doctor, who has been and will continue to be an excellent source of information and support.
I'm grateful for good friends and family, who are there for me when the times get tough, and are always willing to lend an understanding ear.
I'm grateful for Emma.
It was cold in the house, because I still haven't turned on the heater yet, and when I looked outside, it seemed like the perfect morning to make it. The weather is changing--getting a little bit colder every day, with more and more leaves dropping from the trees. Winter is coming, and while I'm bracing myself for the months of gray, I know that eventually spring will come, and the world will be bright and new once again.
We have even more changes going on in our house right now, and I hope that just like the changing seasons, once the hard (but necessary) months of gray pass, we will come out on the other side brighter, too.
............
Last week, my little Emma was diagnosed with celiac disease. Many of you may know what that is, or have a family member who has it, because it's quickly becoming one of the fastest growing (or rather, recognized) diseases of the decade.
It basically means that she is gluten intolerant, and cannot eat wheat, rye, oats, or barley. She is now on a gluten-free diet, which when followed correctly, will not only eliminate any symptoms, but actually heal the affected villi in her small intestine.
When you stop and think how many things have gluten in it, it can seem very overwhelming. Most processed or boxed foods, and even canned soups contain gluten in some form--many times contained in the added preservatives, such as modified food starch, monosodium glutamate, and maltodextrin. It eliminates cookies, crackers, bread, pasta, most cereals, pizza, and anything made with flour.
For a little four year old, it can be really hard to understand why she can't have the preschool snack that everyone is having, or why she can't eat the donuts at the cider mill. But, we have some things on our side, too. Emma is a very logical four year old, and has the ability to reason much more than any of my others have been at her age. When I explained to her that eating certain things made her tummy hurt, and that we really needed to stop eating them, she understood. She has taken to caramel rice cakes like nothing else, and loves that she has special boxes of rice pasta and granola bars that are just hers.
I'm not saying we're not going to have challenges, because they will most certainly come. Trying to cook a dinner each night that she can eat, and that everyone will enjoy will be tricky. Helping her through the birthday parties, preschool snacks, lunches with friends, school lunches, going out to eat, and the myriad of other times that this will be an issue is going to be hard. At some point, her reasoning will fall, and her emotions will come through. I know there will be times where both of us will be crying our eyes out, maybe even banging our fists at the sheer frustration and disappointment that will most likely come. And that's okay. But I'm hoping that if we focus on the positive things--on all the things we have to be grateful for--it might help us all through those difficult moments.
..........
I'm grateful that there is something we can do to help--that we have some modicum of control, and that I don't have to sit and wonder if she'll be okay. As long as the diet is followed, she will be healthy and happy. How fortunate we are, for this.
I'm grateful for parents that paved the way for me, and raised my brother and sister who also have it. I grew up in a home where we ate simply, but never knew it. My dad is the rice flour expert, and has already shared the secrets to yummy rice waffles. (which are actually really good!)
I'm grateful for an amazing doctor, who has been and will continue to be an excellent source of information and support.
I'm grateful for good friends and family, who are there for me when the times get tough, and are always willing to lend an understanding ear.
I'm grateful for Emma.
15 comments:
Gushers, hersheys kisses, hershey bars with almonds all Gluten free also soba noodles my kids love them!!!!
Sorry to hear about Emma, and I am sure that there will be some frustration. I have seen a ton of blogs that are dedicated to this diseaste, so hopefully they can be a good resource for you. Thanks for the beggining of the post because it reminded me to turn the heater off before Frank comes home.
Oh Kierste! Sorry to hear this. You are one amazing mom. I've thought about you a bit recently - wondering how your oldest boy is doing. I'd love to meet you one of these days - or even talk on the phone perhaps. Good luck with the new diet for Emma!!
Stacy S
That is a tough one. My brother has it. To this day he will not follow it. I do feel for you. You amaze me with your positive attitude. Not just in this but in most all your posts. I know you and Emma can do it. And if it isn't perfect all the time that's okay as well. Good luck. We will be thinking about you. I know hour sis is a great resource.
My daughter's missionary boyfriend who comes home in a few days has celiacs. She has been working hard to learn all about gluten free cooking.
You are so amazing and always focus on the positive.
Poor Miss Emma! and you! She is one of my favorites :) I will have to come up with a special treat for her.
Again, I'm so sorry to hear this. What a tough journey. It seems you've had a lot to process and have and can appreciate the lessons to be learned. I'm glad you already have so much knowledge and some supports to help you along that way.
oh no! poor emma! meg's best friend has this and it's become their way of life. doesn't make it any easier, though!
I'm sorry to hear this! For some reason I thought Ryan had that too? I have a friend in Cheyenne who has it and all of her kids do too. I'll have to see if she can share her recipes.
So glad that you have family that's been through it!! It's not an impossible task- you've seen that with your own family! My Mom has it too and has managed to survive it! Be glad it was discovered now and not when she was in her 40's like my Mom- it's MUCH tougher then!!
I'm sorry to hear about Emma! She is lucky to have a good mom to help her get through it! Good luck with everything!
Good luck. I'm thinking of you and Emma. I know a lot of the stores around here are starting to carry more gluten free items. Hopefully that is the case in your area.
It does make me stop to think though that although my family has not been diagnosed with anything like this, that I need to simplify our eating, weed out more of the unnecessary and eat all around healthier.
K, didn't you have this? Am I remembering wrong? I think about you all the time, when I hear about rice milk, etc. You are amazing and inspiring, with the way you take these things (diabetes, helmets, twins squared, ciliac's) in stride and adopt your new lifestyle. Your children are going to be strong people. Love you!
A friend of mime was telling me about how she orders some of her special foods at Amazon (free shipping for $25) and how there were more options that way. There's certainly a learning curve. At our house we cook without milk for my little guy. You never notice how many things have it until you can't eat it!
sorry, "nicole" is me. I didn't realize my SIL was stilled logged into my computer ;) In case you are wondering...
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