I feel like it's a full-time job writing about the times Caroline goes in the hospital, and it's a sad commentary on her little life right now.
Once again, she ended up in the hospital exactly thirty days after her last discharge, and we were there for five days. Thankfully, we were given meds to start at the first sign of sickness, so it lessened the severity this time around. She still required critical care, and was in the PICU, but she didn't have to be intubated, which was huge.
We talked to lots of doctors, and they all left, calling her a "puzzle". We are now spending the month of November visiting several different specialists, hoping they can pinpoint her triggers and the cause. The Lung Center, Allergy & Immunology, Cardiology, Hematology, and ENT are all on our list for varying reasons. An echocardiogram was done in the hospital, looking for possible issues that could be affecting her respiratory problems. None were found, but a separate issue was discovered, and she will now be seeing a cardiologist to address it.
This girl. She gets five meds, twice a day (including two shots), all in the hopes that she can stay out of the hospital through the winter. It's a huge task, but we're doing everything we can, and so are the doctors. They are working hard for her! Every day she is happy and healthy--it's just preparing for that moment out of the blue that she gets a little bug, and it goes straight to her lungs.
We talked to lots of doctors, and they all left, calling her a "puzzle". We are now spending the month of November visiting several different specialists, hoping they can pinpoint her triggers and the cause. The Lung Center, Allergy & Immunology, Cardiology, Hematology, and ENT are all on our list for varying reasons. An echocardiogram was done in the hospital, looking for possible issues that could be affecting her respiratory problems. None were found, but a separate issue was discovered, and she will now be seeing a cardiologist to address it.
This girl. She gets five meds, twice a day (including two shots), all in the hopes that she can stay out of the hospital through the winter. It's a huge task, but we're doing everything we can, and so are the doctors. They are working hard for her! Every day she is happy and healthy--it's just preparing for that moment out of the blue that she gets a little bug, and it goes straight to her lungs.
P.S. That is a diaper on her foot! Her IV is in her foot, and the diaper is protecting it...from her. :)
